I am mad, mad, mad.
I miss being vital, invigorated and active. Yeah, I'm jealous. Jealous of those who jump out of bed in the morning. What a gift. It's a decorated box I wish I could unwrap and hold close to my heart.
January 26th was the 21st anniversary of my transplant. I spent the day in bed, and lay there for 3 days. Ah, such has become my life. I am now down to 10-15% kidney function. I suspect dialysis is not too far behind. As my Canadian doctor so eloquently put it, kidney disease is a life long issue.
It infuriates me.
I miss my life more than I can articulate.
I am fearful of dialysis. I am fearful that I will wait years for a transplant.
And I feel so very alone.
Chronic illness is very isolating. I don't think anyone fully understands the journey involved. But how can they? It's my
challenge. My mountain. And my cross to bear.
And despite it all, I will always be Forever 21.
I love you and wish I could help carry your cross with you, walk along you with you as you climb your mountain. I can't imagine how dark it gets in your nights but wish I could send some ray of light and rays of hope. Keep the faith hugs and kisses brave cousin of mine
ReplyDeletei love you so much. you are so amazing and compassionate. h xo
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